Interessengemeinschaft Menschen mit Immundefecten
 http://www.immundefekte.de/  

AIP - Associazione Per Le Immunodeficienze Primitive
  http://www.aip-it.org/ 

IDF - Immune Deficiency Foundation, USA
  http://www.primaryimmune.org/ 

JMF - Jeffrey Modell Foundation, USA
  http://www.jmfworld.com/ 

The KIDS Foundation in New Zealand
  http://www.idfnz.org.nz/ 

Deutsche Selbsthilfe Angeborene Immundefekte E.v
  http://www.dsai.de/ 

PIO - Primary Immunodeficiency Organization,Sweden
  http://www.pio.nu/ 

PiA - Primary Immunodeficiency Association, United Kingdom
  http://www.pia.org.uk/ 

Finnish Patient Organisation for Primary Immunodeficiencies
  http://www.immuunipuutospotilaidenyhdistys.fi 

The Danish Immune Deficiency Foundation
  http://www.idf.dk/ 

International Patient Organisation for Primary Immunodeficiency
  http://www.ipopi.org/ 

Other sites of interest

Association of Medical Research charities:
  http://www.amrc.org.uk/ 

Chronic Granulomatous Disorder Website
  http://www.cgd.org.uk/ 

The Web Site for Chronic Mucocutaneous Candidiasis Information and Help
  http://www.candida.org.uk 

Anthony Nolan Bone Marrow Trust:
  http://www.anthonynolan.org.uk 

Hermansky-Pudlak Syndrome
  http://www.hpsnetwork.org/