Hi

Not everyone is so lucky to live in a contry with free medical help!

I have posted two stories about some Griscelli Syndrome girls in need of finalcial help!

 

Please take a moment to read their stories.

Hi, my name is Serenity Avila. I am 6 months old with a rare gentic syndrome called Griscelli Syndrome type 2. Griscelli syndrome type 2 is where I have "immune system abnormalities in addition to having hypopigmented skin and hair.

 

 

Please help!

 

https://www.gofundme.com/2kt9wkuc?ssid=774645609&pos=2

Emma is the youngest of three. She has two older sisters, who adores her and a huge slew of family members who loves and have been supporting her through her illness.

Emma Vang, born with blond colored hair and very fair skin, which was much-admired to be her most beautiful traits. Though thought to be her ancestry endowment, that’s common in the Hmong ethnicity, these lovely features would turn out to be the vastest trial that Emma would ever have to endure. Along with having to do so

Hi

I just found this web site. It gives an up to date acount regarding Griscelli Syndrome.

 

I found this web-site, it has a up to date info regarding post BMT.

 

 

Hi

I have made a Facebook forum for all who knows about living with Griscelli Syndrome, and the ones who need to know more. It is called "Griscelli Syndrome", come and join us.